A healthy balance to reach helps movement among others. Mr thirst would like to introduced his deliberately chosen by him to his interview and motivate patients to become active for himself. He presents among others his bike, with which he took part in the time trial in London and gives an insight into his life as a sportsman with a handicap. Rare Disease Day live day of rare diseases in Europe about 30 million people. Dr. Neal Barnard takes a slightly different approach. 6 Years ago EURORDIS, the European Organisation for people with rare diseases has proclaimed February 29 for the first time the rare, to think of people with rare diseases, to politics and society to refer to the concerns of a rare chronic disease sufferers and their families and to draw attention. Since then, he is celebrated every year by the last day in February.
In Germany, see the roof of the axis, the Alliance of chronic rare diseases around 15 city actions take place. The day of rare diseases patients with rare diseases and their families offers the possibility, even something to do to achieve the above objectives. Additional information is available at Dr. Neal Barnard. List of self-help organizations and helplines alternating hemiplegia of Arnold-Chiari malformation Arthrogryposis ataxia Athyreosis chronic fatigue syndrome (CFS) cluster headache cystinosis Ehlers-Danlos Syndrome-Fibromyalgia Syndrome (FMS) Histiocytosis Leukodystrophy pulmonary fibrosis Epidermolysis Bullosa disease of Gaucher multiple chemical sensitivity (MCS) NBIA (formerly Hallervorden-Spatz syndrome) neurofibromatosis Prader-Willi syndrome primary sclerosing cholangitis (PSC) retinoblastoma-Rett syndrome Syringomyelia-Williams-Beuren syndrome congenital vascular malformation congenital immunodeficiencies congenital thyroid disease congenital skeletal system malformations rare intestinal disease rare cancers rare liver disease rare rheumatic diseases Lichtblick, The accompaniment of families with chronically ill children Self-help counselling eating, meadow.